My wife, Cazandra, had complicated surgery last week that required her to spend some time in the hospital, followed by at least two weeks of inpatient rehabilitation. We were in shock, as we’d thought ...

Caeleb looked up to his big brother, finding comfort in his presence. As the elder sibling, Julian assumed the role of protector, his voice a beacon of reason and compassion for Caeleb in his battles ...

Metagenomi is preparing to initiate IND-enabling activities that seek to support MGX-001’s transition from preclinical to ...

Jared Formalejo, who has hemophilia B, and his wife, Alliah, live in the Philippines. They share about times people expressed fear about hemophilia and how they responded. Jared: Around grade five, I ...

So when he was a baby, he had an inhibitor. And so our treatment center had him wear a padded helmet. And one time when we were at the barbershop, and we were sitting and waiting and Hank had his ...

Jennifer Lynne has hemophilia B and lives in Florida. She reflects on an important lesson that she learned the hard way when trying to figure out the cause of a confusing bleed. So I was on vacation ...

G Shellye Horowitz, MA, PPS, has strong ties to the bleeding disorders community with six traceable generations of hemophilia A in her family. She also has hemophilia A. Her advocacy work includes an ...

Columnist G Shellye Horowitz's health issues pose challenges during her tap class, but she's resolved to find ways to keep on ...

After a decade of living alongside my husband, Jared, and his severe hemophilia B, I’ve learned that not all bleeding is as straightforward as it may seem. Bleeds vary widely, not just in size but in ...