Cystic Fibrosis Foundation4d
CF Researchers Offer Current Outlook on Genetic Therapies, Diabetes Care, and Reproductive Health
Each year, researchers and care team members gather at the North American Cystic Fibrosis Conference to share their research on how to improve the lives of people with cystic fibrosis. The three ...
Cystic Fibrosis Foundation9d
Reporting, Investigations, and Whistleblower Policy
Reporting misconduct helps to promote and maintain an inclusive, respectful, and safe environment. The Foundation has outlined the process for reporting and investigating violations of its policies or ...
Cystic Fibrosis Foundation9d
Anti-Discrimination and Harassment Policy
The Foundation prohibits discriminatory or harassing behavior or speech directed toward individuals because of protected characteristics. The Foundation also prohibits bullying, which includes ...
Cystic Fibrosis Foundation11d
A New Era of CF Care: Possible Future Changes
New clinical guidance was created to help cystic fibrosis care centers care for people with CF as they face a widening range of health needs. The guidance covers how and when routine CF care is ...
Cystic Fibrosis Foundation12d
Copay Accumulators, Maximizers, and Alternative Funding Programs
In response to rising drug costs, some insurance plans are using strategies to contain costs that shift financial and administrative burdens to enrollees. These strategies, known as copay accumulator ...
Cystic Fibrosis Foundation13d
Cystic Fibrosis Foundation Position Paper: Redefining the Care Model
The Cystic Fibrosis Foundation organized a multidisciplinary committee to reevaluate key aspects of the current care model and considered potential modifications based on a widening range of health ...
Cystic Fibrosis Foundation13d
Cystic Fibrosis Foundation Position Paper: Redefining the Cystic Fibrosis Care Team
The Cystic Fibrosis Foundation assembled a panel to summarize available evidence, synthesize expert opinion, and provide clinical guidance for the composition of the care team at an accredited CF ...
Cystic Fibrosis Foundation9d
How to Navigate College and Employment With CF
Balancing college and working full-time while managing my cystic fibrosis can be challenging. However, I have tips and insights that have helped me juggle my academic and professional responsibilities ...
Cystic Fibrosis Foundation25d
My Journey to an Autism and ADHD Diagnosis
Have you ever wondered if there was something else going on with you? Something else affecting you that you were not aware of? Well, I felt that way. Ever since I was young, I have always struggled ...
Cystic Fibrosis Foundation29d
Why We Chose Not to Have Children
I imagine most people have vivid memories of the first date they went on with their spouse. Emily took me on a hike through Will Rogers State Park in Los Angeles. It was a perfect, blue-sky, Southern ...
Cystic Fibrosis Foundation23d
Cystic Fibrosis Foundation Leads the Way in Improving CF Newborn Screening Across the U.S.
Through grants, advocacy, and the development of a consensus guideline, the Cystic Fibrosis Foundation continues to advance its Newborn Screening Initiative, pushing for better newborn screening ...